The BDSRA Family Conference, developed by the Batten Disease Support and Research Association, serves as a vital platform for families affected by Batten disease. This annual event stands as a cornerstone in North America, offering a robust community for support, educational resources, scientific insights, networking opportunities, and engagement in research endeavors. Participants can interact with experts, explore research posters, seek answers to critical inquiries, connect with fellow parents, and join sessions virtually.

Families can partake in the conference from the convenience of their homes, ensuring that every member can actively participate and contribute in a significant manner. The event caters to a diverse range of needs and interests, fostering a sense of unity and empowerment within the Batten disease community.